Update - 6/27/07
The last week or two have been a roller-coaster ride for the Kurz family. Things were pretty tough for Matthew following the surgery to remove the bachlofin pump. He had what seemed excessive fluid/puss oozing from the incision area, but after another trip to the hospital they found out that it is natural for the body to filling the cavity left by the bachofin pump with fluid and a great deal of it was oozing out. That has improved. Matthew also had to have an antibiotic because tests showed there was bacteria around the area where the pump was.
Toward the end of last week Matthew's spasms got better and he's handling them better. Instead of "fighting" them when they come, he calmly waits for them to pass and "works with them". After the surgery he tired easily and was not sleeping well at night. He had to work back slowing into the therapy routine.
After the surgery there was some setback in Matthew's progress with speech therapy. He was saying seven to nine word sentences clearly before the surgery but afterwards, he didn't say much in sentences and he was hard to understand. This has improved tremendously in the last week. Saturday Matthew was making a face that he wasn't happy about something, but the family couldn't figure out what was wrong. His mom said, "Matthew, you're going to have to tell me what you need. I can't understand what you're telling me with that face." Matthew then said very clearly and said the whole sentence, "I want to lay down please." It's great when Matthew can initiate the words and not just repeat what someone tells him to say.
Monday Matthew's cast was taken off and he's being fitted for a foot brace to be worn indefinitely. It's wonderful to see Matthew's foot in a normal position. As you can probably guess, he will have to do lots of therapy with that foot to stretch the tendons, but it's looking good. Things are really positive today. Matthew was standing at therapy and he initiated a small, but noticeable step with his left foot. This is terrific!
Well, the "roller coast ride" I mentioned before has it's ups and downs for Andrew as well. He fell while roller skating and broke his hand. He broke one of the major bones in the hand and this bone also happens to be the bone that takes the longest in the body to heal. Andrew will have to wear a cast for two months, but at least it is a removable cast so he can take it off to shower. But this doesn't stop Andrew. He promised his boss at the pizza restaurant that he can be a bus boy with one good hand. And so far he's doing a great job managing the "inconvenience." Hopefully his hand will heal well so he won't be going off to college with a cast on his hand.
God's blessings to you this week!
Rachel Asburry
Matthew's Godmother
Toward the end of last week Matthew's spasms got better and he's handling them better. Instead of "fighting" them when they come, he calmly waits for them to pass and "works with them". After the surgery he tired easily and was not sleeping well at night. He had to work back slowing into the therapy routine.
After the surgery there was some setback in Matthew's progress with speech therapy. He was saying seven to nine word sentences clearly before the surgery but afterwards, he didn't say much in sentences and he was hard to understand. This has improved tremendously in the last week. Saturday Matthew was making a face that he wasn't happy about something, but the family couldn't figure out what was wrong. His mom said, "Matthew, you're going to have to tell me what you need. I can't understand what you're telling me with that face." Matthew then said very clearly and said the whole sentence, "I want to lay down please." It's great when Matthew can initiate the words and not just repeat what someone tells him to say.
Monday Matthew's cast was taken off and he's being fitted for a foot brace to be worn indefinitely. It's wonderful to see Matthew's foot in a normal position. As you can probably guess, he will have to do lots of therapy with that foot to stretch the tendons, but it's looking good. Things are really positive today. Matthew was standing at therapy and he initiated a small, but noticeable step with his left foot. This is terrific!
Well, the "roller coast ride" I mentioned before has it's ups and downs for Andrew as well. He fell while roller skating and broke his hand. He broke one of the major bones in the hand and this bone also happens to be the bone that takes the longest in the body to heal. Andrew will have to wear a cast for two months, but at least it is a removable cast so he can take it off to shower. But this doesn't stop Andrew. He promised his boss at the pizza restaurant that he can be a bus boy with one good hand. And so far he's doing a great job managing the "inconvenience." Hopefully his hand will heal well so he won't be going off to college with a cast on his hand.
God's blessings to you this week!
Rachel Asburry
Matthew's Godmother
posted by Randy Asburry @ 9:00 PM
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